As the owner of Lakewish, I’m committed to giving back. It’s been a labor of love – and an honor – to be able to start a small business that mixes my love of the Northwoods with spreading awareness and giving back to organizations that have shaped my life.
On October 6, 2009, at just 24 years old, I was diagnosed with Relapsing-Remitting Multiple Sclerosis (MS). This diagnosis came after weeks of unexplained symptoms—tingling, numbness, and the fear of the unknown. Though it was devastating at the time, I’ve chosen to share my story to educate others about this condition that has become such a big part of my life. As a small business owner, I’ve crafted my business around giving back.
What Is Multiple Sclerosis (MS)?
MS is a chronic autoimmune disease in which the immune system attacks the protective covering (myelin) of nerve fibers in the central nervous system, disrupting communication between the brain and body. Depending on the severity and location of the nerve damage, this damage can result in a wide range of symptoms.
MS manifests in different forms, each with unique characteristics:
- Relapsing-Remitting MS (RRMS): The most common type, featuring relapses (episodes of symptoms) followed by remissions. This is my diagnosis.
- Primary Progressive MS (PPMS): Symptoms gradually worsen without distinct relapses or remissions.
- Secondary Progressive MS (SPMS): Often begins as RRMS and later transitions to a more progressive form.
What Causes MS?
The exact cause of MS remains unknown, but researchers believe it stems from a combination of genetic and environmental factors. Some potential risk factors include low levels of vitamin D, smoking, certain viral infections, like Epstein-Barr virus, or a family history of MS.
Diagnosis and Treatment
Diagnosing MS often involves a series of tests, including MRIs, blood tests, and spinal taps. While there is no cure for MS, treatments have significantly improved over the years. Disease-modifying therapies (DMTs) help reduce relapses and slow progression, while physical therapy and medications can manage specific symptoms.
Treatment has played a vital role in managing my MS. I started with Betaseron, an injectable medication that helps prevent my immune system from attacking my nerves. While the injections were difficult to adjust, they kept me stable. Since my initial attack, I have only experienced two additional severe relapses. While scary, I recovered from both relapses within a few weeks.
Living with MS
One of the most challenging aspects of MS is its unpredictability. Some individuals experience mild symptoms and long periods of remission, while others face more severe and progressive symptoms.
Despite its challenges, MS doesn’t define a person. Many individuals with MS lead fulfilling lives thanks to strong support systems, advancements in treatment, and a positive outlook. Building awareness and understanding among friends and family is essential for those living with the condition. I have a beautiful family and an incredible son, and now, I have a business that allows me to give back to support organizations I care deeply about.
Why Awareness Matters
I want to stress how vital education and understanding are when it comes to MS. It can be an invisible disease, making it harder for those without firsthand experience to grasp its impact. But having informed and supportive people in my life has made all the difference. Organizations like the National MS Society provide valuable resources, support, and opportunities to contribute to research efforts.
It’s important to understand that MS is not a death sentence. While life expectancy may be slightly shorter for those with MS, advancements in treatments have made it possible for many people, like me, to lead fulfilling lives. Maintaining a healthy lifestyle, including adequate vitamin D, may also help reduce risk factors associated with the disease.
My journey with MS doesn’t define me, but it’s a part of who I am. Although MS disrupts communication between the brain and body, I’ve found that spending time outside, disconnecting, and enjoying nature helps center me on what’s important. It’s healing.
I strive to raise awareness and encourage others to support research and resources for those living with this condition. To learn more about Multiple Sclerosis or to contribute to the fight for a cure. Plus, every time you buy cute Up-North clothing from Lakewish, you can rest easy knowing a portion of your proceeds goes to MS research.
Together, we can make a difference!
